Family perspectives on the hospice experience in adult family homes.
نویسندگان
چکیده
Growing numbers of terminally ill older adults receive hospice services in adult family homes (AFHs); however, little is known about the provision and receipt of end-of-life care in such environments. This article reports findings from a qualitative exploration of family members' perspectives of the hospice experience in AFHs. Analysis of data obtained during interviews of 15 residents' family members exposed significant challenges associated with transition to an AFH, highlighted the importance of AFH and hospice staff in family members' assessment of overall quality of care, and emphasized the critical nature of communication in AFH settings.
منابع مشابه
Family perspectives on end-of-life care experiences in nursing homes.
PURPOSE The purpose of this study is to expand knowledge regarding end-of-life care received in nursing homes through the use of narrative interviews with family members close to the decedents. DESIGN AND METHODS We conducted follow-up qualitative interviews with 54 respondents who had participated in an earlier national survey of 1,578 informants. Interviews were taped and transcribed and th...
متن کاملEnd-of-life care in the nursing home.
OBJECTIVE Even though more than 25% of Americans die in nursing homes, end-of-life care has consistently been found to be less than adequate in this setting. Even for those residents on hospice, end-of-life care has been found to be problematic. This study had 2 research questions; (1) How do family members of hospice nursing home residents differ in their anxiety, depression, quality of life, ...
متن کاملFamily perspectives on end-of-life care at the last place of care.
CONTEXT Over the past century, nursing homes and hospitals increasingly have become the site of death, yet no national studies have examined the adequacy or quality of end-of-life care in institutional settings compared with deaths at home. OBJECTIVE To evaluate the US dying experience at home and in institutional settings. DESIGN, SETTING, AND PARTICIPANTS Mortality follow-back survey of f...
متن کاملThe end-of-life experience in long-term care: five themes identified from focus groups with residents, family members, and staff.
PURPOSE We designed this study to examine the end-of-life (EOL) experience in long-term care (LTC) based on input from key stakeholders. DESIGN AND METHODS The study consisted of 10 homogeneous focus groups drawn from a purposive sample of LTC residents (2 groups; total n = 11), family caregivers (2 groups; total n = 19), paraprofessional staff (3 groups; total n = 20), and licensed/registere...
متن کاملLived experience of teenage girls from living in pseudo-family centers
Introduction Every year, due to economic and social pressures, parents leave a large number of children in the community, which is the most common form of care for these children around the world, care and living in orphanages . The aim of this study was to investigate the lived experience of adolescent girls living in orphanages (boarding houses). Method The method of the present study was ...
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عنوان ژورنال:
- Journal of gerontological social work
دوره 54 2 شماره
صفحات -
تاریخ انتشار 2011